Siemens
'I Am Autism' Advocacy Video Sparks Controversy
By Claudia Wallis
'I Am Autism' Advocacy Video Sparks Controversy
UPDATED: 11/06/2009

Few medical conditions rival autism as a magnet for controversy. Practically everything about the disorder -- its cause, its treatment, the way it is diagnosed, how it is studied -- is subject to bitter dispute, sometimes to the point of death threats.

The most impassioned disagreements are propelled by desperate parents of autistic children, but increasingly, people who themselves have an autism spectrum disorder (ASD) diagnosis are speaking up. And their priorities, surprisingly enough, are not always in line with the advocacy groups who seek to represent their interests.

The latest example is the eruption over a video produced for Autism Speaks, the nation's largest autism advocacy group. The slickly produced video, written by Grammy-nominated songwriter Billy Mann and directed by Academy Award?winning director Alfonso Cuar[a {o}]n, shows a series of images of children with autism, accompanied by an ominous voice-over: "I am Autism ... I know where you live ... I live there too ... I work faster than pediatric AIDS, cancer and diabetes combined ... And if you are happily married, I will make sure that your marriage fails."

Some autistic "self advocates" are furious over the tone of the video. "We don't want to be portrayed as burdens or objects of fear and pity," insists Ari Ne'eman, president of the Autistic Self-Advocacy Network, a 15-chapter group he built while attending college at the University of Maryland, Baltimore County. "Apparently, should my parents divorce, it's all my fault," says Ne'eman, who received a diagnosis of Asperger's syndrome, a relatively mild form of autism, at age 12.

Photo: Autism Speaks

Page 1 of 3
NEXT PAGE>>
Read Full Article


Siemens
Email This
Health & Science
TIME Home
Help
About TIME
Subscribe to Time
CNN International
© 2009 Time Inc. All rights reserved.
beacon